The Most Important Questions- A Rare Disease Day poem

When you stare into nothing what do you see?
Do you think of the person that you used to be?
Are you wondering in time just what you'll become?
Do you think of the day that this fight will be done?
Do you dwell on the memories of what made you smile?
Do you miss all the words you've not said in awhile?
Do you miss that though wobbly your legs could once run?
How many times have you redefined fun?
Do you even know you're the meaning of brave?
Do you lose hope, like me, that you still can be saved?
Is it wrong that I ask that you always return,
So that through your example I continue to learn?
Patience and value for each gifted minute
Joy and connection and love with no limit
Just how do you do it, Also how can I?
But most of all how do I get through goodbye?